Muscular Dystrophy
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Pfizer Pauses Gene Therapy Trial For Muscle Disease After Death
Pfizer Inc. paused a study of an experimental gene therapy for muscular dystrophy after a child who received it died suddenly.
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Delhi Court Notice To Centre On Request Of Boy Suffering From Rare Disease
The Delhi High Court today issued a notice to the Central Government on a plea moved by an 11-year-old child suffering from the rare disease Duchenne Muscular Dystrophy (DMD).
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"Why Were We Kept In Dark?": Delhi High Court On Rare Disease Clinical Trial
The Delhi High Court on Wednesday expressed its displeasure over being "kept in dark" about an ongoing trial here for Duchenne Muscular Dystrophy (DMD) when it has been dealing with issues pertaining to indigenous treatment of the rare disease.
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After Tweet About Sons' Disease, Ex BJP Corporator, Family Found Dead
A former BJP corporator and his wife on Thursday died by suicide after allegedly murdering their two children - who were suffering from muscular dystrophy - in Vidisha district of Madhya Pradesh on Thursday evening, said the police.
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Court Expresses Displeasure Over No Treatment For Kids With Rare Disorder
The Delhi High Court on Tuesday expressed its displeasure over treatment not yet provided to the children suffering from the rare disease Duchenne muscular dystrophy (DMD) despite the direction of the court.
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Researchers Identify Second Gene Mutation Linked To HIV Resistance
A rare genetic mutation that causes a form of muscular dystrophy affecting the limbs also protects against HIV infection, Spanish scientists reported Thursday.
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Woman, Mother Suffering Rare Genetic Disease Seek President's Nod For Passive Euthanasia
A woman and her 33-year-old daughter, suffering from muscular dystrophy, have written to President Ram Nath Kovind seeking permission for passive euthanasia.
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Jerry Lewis, The King Of Comedy, And The Legacy He Left Behind
Few comedians have been so beloved and so derided as Jerry Lewis, who amassed devoted fans and stunningly hostile reviews from critics. Few have been so accomplished as humanitarians - his annual muscular dystrophy telethons had raised almost $1.5 billion by the late 2000s - or so polarizing as personalities
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Air India Flies 3 Seriously Ill Bangladeshi Citizens Free Of Cost
Showing its humane face, national carrier Air India on Sunday flew three young Bangladeshi citizens, suffering from serious muscular dystrophy, for treatment at a Mumbai hospital along with their relatives - free of charge.
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Kerala Teen Can't Go to School, So His Teachers Come To Him
Two teachers from Kerala's Vazhakkad government school are helping 16-year-old Muhammed Muzammil study despite his physical limitations. Muzammil suffers from a congenital muscular weakness that has left him unable to move or even eat by himself.
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What 'Silences' X Chromosome In Girls Decoded
Scientists led by an Indian-origin researcher may have discovered what actually silences the X chromosome in girls, a finding that could lead to ways to counteract X-linked diseases in women.
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Gene-Editing Technique Could Treat Muscular Dystrophy
A gene-editing technique has shown promise in treating Duchenne muscular dystrophy (DMD), the most common and severe form of muscular dystrophy among boys which is characterised by progressive muscle degeneration and weakness.
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Gene Editing Tool Treats Muscular Dystrophy In Adult Mammal
Scientists, including one of Indian-origin, have successfully used a gene editing tool to treat a genetic disease in a fully developed living mammal for the first time, an advance that may be translated in humans.
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World's First Blood Test for Accurate Prenatal Testing
Scientists at Plymouth University have developed a non-invasive, low risk and accurate blood test that can detect foetal blood group, sex, and genetic conditions in unborn babies.
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Indian-Origin Boy Denied Life-Saving Drug in UK
Six children, including a 6-year-old Indian-origin boy, has been denied life-saving treatment from a rare disease due to high costs by UK's state-funded health service.
-
Pfizer Pauses Gene Therapy Trial For Muscle Disease After Death
Pfizer Inc. paused a study of an experimental gene therapy for muscular dystrophy after a child who received it died suddenly.
-
Delhi Court Notice To Centre On Request Of Boy Suffering From Rare Disease
The Delhi High Court today issued a notice to the Central Government on a plea moved by an 11-year-old child suffering from the rare disease Duchenne Muscular Dystrophy (DMD).
-
"Why Were We Kept In Dark?": Delhi High Court On Rare Disease Clinical Trial
The Delhi High Court on Wednesday expressed its displeasure over being "kept in dark" about an ongoing trial here for Duchenne Muscular Dystrophy (DMD) when it has been dealing with issues pertaining to indigenous treatment of the rare disease.
-
After Tweet About Sons' Disease, Ex BJP Corporator, Family Found Dead
A former BJP corporator and his wife on Thursday died by suicide after allegedly murdering their two children - who were suffering from muscular dystrophy - in Vidisha district of Madhya Pradesh on Thursday evening, said the police.
-
Court Expresses Displeasure Over No Treatment For Kids With Rare Disorder
The Delhi High Court on Tuesday expressed its displeasure over treatment not yet provided to the children suffering from the rare disease Duchenne muscular dystrophy (DMD) despite the direction of the court.
-
Researchers Identify Second Gene Mutation Linked To HIV Resistance
A rare genetic mutation that causes a form of muscular dystrophy affecting the limbs also protects against HIV infection, Spanish scientists reported Thursday.
-
Woman, Mother Suffering Rare Genetic Disease Seek President's Nod For Passive Euthanasia
A woman and her 33-year-old daughter, suffering from muscular dystrophy, have written to President Ram Nath Kovind seeking permission for passive euthanasia.
-
Jerry Lewis, The King Of Comedy, And The Legacy He Left Behind
Few comedians have been so beloved and so derided as Jerry Lewis, who amassed devoted fans and stunningly hostile reviews from critics. Few have been so accomplished as humanitarians - his annual muscular dystrophy telethons had raised almost $1.5 billion by the late 2000s - or so polarizing as personalities
-
Air India Flies 3 Seriously Ill Bangladeshi Citizens Free Of Cost
Showing its humane face, national carrier Air India on Sunday flew three young Bangladeshi citizens, suffering from serious muscular dystrophy, for treatment at a Mumbai hospital along with their relatives - free of charge.
-
Kerala Teen Can't Go to School, So His Teachers Come To Him
Two teachers from Kerala's Vazhakkad government school are helping 16-year-old Muhammed Muzammil study despite his physical limitations. Muzammil suffers from a congenital muscular weakness that has left him unable to move or even eat by himself.
-
What 'Silences' X Chromosome In Girls Decoded
Scientists led by an Indian-origin researcher may have discovered what actually silences the X chromosome in girls, a finding that could lead to ways to counteract X-linked diseases in women.
-
Gene-Editing Technique Could Treat Muscular Dystrophy
A gene-editing technique has shown promise in treating Duchenne muscular dystrophy (DMD), the most common and severe form of muscular dystrophy among boys which is characterised by progressive muscle degeneration and weakness.
-
Gene Editing Tool Treats Muscular Dystrophy In Adult Mammal
Scientists, including one of Indian-origin, have successfully used a gene editing tool to treat a genetic disease in a fully developed living mammal for the first time, an advance that may be translated in humans.
-
World's First Blood Test for Accurate Prenatal Testing
Scientists at Plymouth University have developed a non-invasive, low risk and accurate blood test that can detect foetal blood group, sex, and genetic conditions in unborn babies.
-
Indian-Origin Boy Denied Life-Saving Drug in UK
Six children, including a 6-year-old Indian-origin boy, has been denied life-saving treatment from a rare disease due to high costs by UK's state-funded health service.
