Neurofibromatosis
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Woman Covered With Thousands Of Tumours Due To Rare Disease, Face Completely Distorted
Charmaine Sahadeo has always had the condition but they were largely unnoticed till her second son Osiris, now 19, was born.
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American Airlines Kept Children Overnight Without Food, Say Parents
The 8-year-old, who lives in Beaverton, Oregon, flew east in early August for the camp's week-long summer program outside of Charlottesville, Virginia, specifically for children with neurofibromatosis, a genetic disorder that causes tumors to grow on nerve tissue.
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Rare Skin Disease Left Him Isolated. Surgery Gave Him Back His Life
When Enrique Galvan was growing up in Paraguay, other children called him a monster. When he was a toddler, a rare genetic disorder called neurofibromatosis was diagnosed, and it caused benign tumors to form on his nerve tissue and create what appeared to be pieces of extra skin drooping from his head, neck and face. It wasn't until he was old enou...
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''The Man With Three Faces'' Has Second Transplant
Jerome Hamon is getting used to his new soubriquet "the man with three faces". He remains in a Paris hospital, three months after undergoing his second face transplant, but has quickly accepted his new "identity".
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Woman Covered With Thousands Of Tumours Due To Rare Disease, Face Completely Distorted
Charmaine Sahadeo has always had the condition but they were largely unnoticed till her second son Osiris, now 19, was born.
-
American Airlines Kept Children Overnight Without Food, Say Parents
The 8-year-old, who lives in Beaverton, Oregon, flew east in early August for the camp's week-long summer program outside of Charlottesville, Virginia, specifically for children with neurofibromatosis, a genetic disorder that causes tumors to grow on nerve tissue.
-
Rare Skin Disease Left Him Isolated. Surgery Gave Him Back His Life
When Enrique Galvan was growing up in Paraguay, other children called him a monster. When he was a toddler, a rare genetic disorder called neurofibromatosis was diagnosed, and it caused benign tumors to form on his nerve tissue and create what appeared to be pieces of extra skin drooping from his head, neck and face. It wasn't until he was old enou...
-
''The Man With Three Faces'' Has Second Transplant
Jerome Hamon is getting used to his new soubriquet "the man with three faces". He remains in a Paris hospital, three months after undergoing his second face transplant, but has quickly accepted his new "identity".
