Spinal Muscular Atrophy
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What Is Spinal Muscular Atrophy? Understanding The Signs, Complications, And Treatment
Understanding the early signs, potential complications, and available treatments for Spinal Muscular Atrophy can be crucial in managing the condition and improving the quality of life for those affected.
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Siddaramaiah Writes To PM, Seeks Help For Treatment Of 15-Month-Old Boy
Karnataka Chief Minister Siddaramaiah has reached out to Prime Minister Narendra Modi, seeking help for the medical treatment of a 15-month-old boy with a rare disease.
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5-Month-Old's Medicine Costs Rs 18 Crore, Father Approaches High Court
The Kerala High Court has sought response of the state government on a plea seeking medical assistance for a five month old baby suffering from spinal muscular atrophy (SMA) for which the medicine costs around Rs 18 crore.
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Bengaluru 10-Month-Old Awaits World's Most Expensive Injection To Survive
A 10-month-old in Bengaluru, Karnataka, is fighting for her life as she waits for a medicine that costs a whopping Rs 16 crore. Diagnosed with Spinal Muscular Atrophy, type 1, the child, Khyati, needs the medicine for gene therapy before she turns 2.
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People Raise Rs 18 Crore To Save Kerala Child From Rare Disease
In a display of human kindness for a cause of serious concern, Rs 18 crore was raised in Kerala through crowdfunding in seven days for an 18-month-old child suffering from a rare genetic disorder called spinal muscular atrophy.
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People Donate Rs 16 Crore For Mumbai Child Who Needed Most Expensive Drug
Paying Rs 16 crore for one injection may seem like an impossible task for most people but that is exactly what the parents of a five-month-old boy in Mumbai have managed to do.
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Gujarat Couple Raise Rs 16 Crore For 1 Injection To Save 5-Month-Old Son
A couple from Gujarat has raised Rs 16 crore with the help of a crowdfunding platform to buy a gene therapy injection for the treatment of their 5-month-old son suffering from spinal muscular atrophy, a rare genetic disorder.
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Parents Crowdfund Rs 16 Crore To Treat 5-Month-Old Daughter, Thank Donors
Tira Kamat, a five-month-old Mumbai infant, has been suffering since birth from spinal muscular atrophy -- a rare genetic condition that leads to the loss of muscles (skeletal muscles) needed for movement. Her middle-class parents couldn't afford a Rs 22-crore injection required for her medical treatment.
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How Technology Helped A Young Japanese Man With A Genetic Disease
Yunik Shin was born with spinal muscular atrophy (SMA), requiring assistance for his daily life. Hoping he'd be able to learn as much as possible on his own, his parents gave him a personal computer when he was just three years old.
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Spinal Muscular Atrophy: Causes, Symptoms And Treatment
Spinal muscular atrophy is a condition which causes muscle wasting and weakness, which might even make it difficult for one to stand, control head movements, walk and in breathe and swallow in some cases.
-
Differently-Abled Girl Tops CBSE Class 10 Exam, Says Didn't Want To Be Treated Special
While Anushka Panda topped the CBSE class 10 examinations in the differently-abled category, what she's most proud of is not using the extra half-an-hour in each paper, to which she is legally entitled.
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Girl Suffering From Spinal Muscular Atrophy Tops CBSE Class 10 In Differently Abled Category
She has secured 489 marks (97.8%) out of 500.
-
What Is Spinal Muscular Atrophy? Understanding The Signs, Complications, And Treatment
Understanding the early signs, potential complications, and available treatments for Spinal Muscular Atrophy can be crucial in managing the condition and improving the quality of life for those affected.
-
Siddaramaiah Writes To PM, Seeks Help For Treatment Of 15-Month-Old Boy
Karnataka Chief Minister Siddaramaiah has reached out to Prime Minister Narendra Modi, seeking help for the medical treatment of a 15-month-old boy with a rare disease.
-
5-Month-Old's Medicine Costs Rs 18 Crore, Father Approaches High Court
The Kerala High Court has sought response of the state government on a plea seeking medical assistance for a five month old baby suffering from spinal muscular atrophy (SMA) for which the medicine costs around Rs 18 crore.
-
Bengaluru 10-Month-Old Awaits World's Most Expensive Injection To Survive
A 10-month-old in Bengaluru, Karnataka, is fighting for her life as she waits for a medicine that costs a whopping Rs 16 crore. Diagnosed with Spinal Muscular Atrophy, type 1, the child, Khyati, needs the medicine for gene therapy before she turns 2.
-
People Raise Rs 18 Crore To Save Kerala Child From Rare Disease
In a display of human kindness for a cause of serious concern, Rs 18 crore was raised in Kerala through crowdfunding in seven days for an 18-month-old child suffering from a rare genetic disorder called spinal muscular atrophy.
-
People Donate Rs 16 Crore For Mumbai Child Who Needed Most Expensive Drug
Paying Rs 16 crore for one injection may seem like an impossible task for most people but that is exactly what the parents of a five-month-old boy in Mumbai have managed to do.
-
Gujarat Couple Raise Rs 16 Crore For 1 Injection To Save 5-Month-Old Son
A couple from Gujarat has raised Rs 16 crore with the help of a crowdfunding platform to buy a gene therapy injection for the treatment of their 5-month-old son suffering from spinal muscular atrophy, a rare genetic disorder.
-
Parents Crowdfund Rs 16 Crore To Treat 5-Month-Old Daughter, Thank Donors
Tira Kamat, a five-month-old Mumbai infant, has been suffering since birth from spinal muscular atrophy -- a rare genetic condition that leads to the loss of muscles (skeletal muscles) needed for movement. Her middle-class parents couldn't afford a Rs 22-crore injection required for her medical treatment.
-
How Technology Helped A Young Japanese Man With A Genetic Disease
Yunik Shin was born with spinal muscular atrophy (SMA), requiring assistance for his daily life. Hoping he'd be able to learn as much as possible on his own, his parents gave him a personal computer when he was just three years old.
-
Spinal Muscular Atrophy: Causes, Symptoms And Treatment
Spinal muscular atrophy is a condition which causes muscle wasting and weakness, which might even make it difficult for one to stand, control head movements, walk and in breathe and swallow in some cases.
-
Differently-Abled Girl Tops CBSE Class 10 Exam, Says Didn't Want To Be Treated Special
While Anushka Panda topped the CBSE class 10 examinations in the differently-abled category, what she's most proud of is not using the extra half-an-hour in each paper, to which she is legally entitled.
-
Girl Suffering From Spinal Muscular Atrophy Tops CBSE Class 10 In Differently Abled Category
She has secured 489 marks (97.8%) out of 500.
