Treatment Of Rare Diseases
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Doctors Discover Rare Vagina Stone In 27-Year-Old Lebanese Woman
The stone, which was the size of an orange, was present in the woman's pelvis.
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Indian Medicines For 4 Rare Diseases Cut Treatment Cost By Nearly 100 Times
Aided by government agencies, Indian drug companies have, in just one year, managed to develop medicines for four rare diseases that cut down their annual cost of treatment by as much as 100 times.
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Woman Dies Of Rare Disease After Eating Sardines In Popular French Town
A woman died in France from botulism after eating sardines at a restaurant last week and 12 other people were in treatment for the rare condition, health officials said Wednesday.
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Centre Releases Rs 40 Crore For Treatment Of Rare Diseases
The Central Government on Wednesday said that Rs 40 crore has been released to 11 centres of excellence including Rs 10 crore to All India Institute of Medical Sciences (AIIMS) for treatment of rare diseases.
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Basic Customs Duty On Drugs, Food For Treatment Of Rare Diseases Waived
The government has exempted basic customs duty on all drugs and food for special medical purposes imported for personal use for treatment of rare diseases.
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"Why Were We Kept In Dark?": Delhi High Court On Rare Disease Clinical Trial
The Delhi High Court on Wednesday expressed its displeasure over being "kept in dark" about an ongoing trial here for Duchenne Muscular Dystrophy (DMD) when it has been dealing with issues pertaining to indigenous treatment of the rare disease.
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Andhra Pradesh Sanctions Rs 1 Crore For Treatment Of Girl With Rare Disease
The Andhra Pradesh government has sanctioned Rs one crore for the treatment of a two-and-a-half year old girl suffering from the rare Gaucher's disease.
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Court Expresses Displeasure Over No Treatment For Kids With Rare Disorder
The Delhi High Court on Tuesday expressed its displeasure over treatment not yet provided to the children suffering from the rare disease Duchenne muscular dystrophy (DMD) despite the direction of the court.
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Rs 16 Crore Raised In Singapore For Treatment Of Indian-Origin 2-Year-Old
A two-year-old boy of Indian origin in Singaporerecovered from a rare neuromuscular disease and regained the ability to walk with the help of Singaporeans who donated nearly 30 lakh Singapore dollars (Rs 16.68 crore) for his expensive treatment.
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23 MPs Meet Health Minister Over Treatment To Patients With Rare Genetic Conditions
A group of 23 Rajya Sabha MPs met Union Health and Family Welfare Minister Mansukh Mandaviya and sought his ministry's immediate intervention to provide treatment to the eligible patients diagnosed with rare genetic conditions, a statement said on W
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Digital Crowdfunding Platform For Rare Diseases Now Operational: Centre To Court
The Delhi High Court was informed by the Centre today that a digital platform to seek crowdfunding for expensive medicines and treatment for rare diseases has now been made operational.
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Make Digital Crowd Funding Platform For Rare Diseases "Operational": Court Cautions Centre
The Delhi High Court Wednesday said it would take action for "wilful non-compliance" if the Centre failed to make operational a digital platform for crowd funding of the expensive medicines and treatment for rare diseases.
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Irrfan Khan's Battle With A "Rare Disease," Documented In His Tweets
Here's a timeline of Irrfan's diagnosis, his treatment, his journey and subsequent comeback to Bollywood
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World Hemophilia Day 2020: Causes And Symptoms Of The Disease In Which Blood Does Not Clot Normally
World Hemophilia Day: Hemophilia is a rare disease in which the blood does not clot normally because of lacking sufficient blood clotting proteins. Read here to know common causes and symptoms of this condition.
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High Court Asks AIIMS To Treat 18-Month-Old For Rare Disease 'Gaucher'
The Delhi High Court has asked the AIIMS to provide treatment to an 18-month-old girl who is suffering from a rare disease 'Gaucher', without charging anything from her father.
-
Doctors Discover Rare Vagina Stone In 27-Year-Old Lebanese Woman
The stone, which was the size of an orange, was present in the woman's pelvis.
-
Indian Medicines For 4 Rare Diseases Cut Treatment Cost By Nearly 100 Times
Aided by government agencies, Indian drug companies have, in just one year, managed to develop medicines for four rare diseases that cut down their annual cost of treatment by as much as 100 times.
-
Woman Dies Of Rare Disease After Eating Sardines In Popular French Town
A woman died in France from botulism after eating sardines at a restaurant last week and 12 other people were in treatment for the rare condition, health officials said Wednesday.
-
Centre Releases Rs 40 Crore For Treatment Of Rare Diseases
The Central Government on Wednesday said that Rs 40 crore has been released to 11 centres of excellence including Rs 10 crore to All India Institute of Medical Sciences (AIIMS) for treatment of rare diseases.
-
Basic Customs Duty On Drugs, Food For Treatment Of Rare Diseases Waived
The government has exempted basic customs duty on all drugs and food for special medical purposes imported for personal use for treatment of rare diseases.
-
"Why Were We Kept In Dark?": Delhi High Court On Rare Disease Clinical Trial
The Delhi High Court on Wednesday expressed its displeasure over being "kept in dark" about an ongoing trial here for Duchenne Muscular Dystrophy (DMD) when it has been dealing with issues pertaining to indigenous treatment of the rare disease.
-
Andhra Pradesh Sanctions Rs 1 Crore For Treatment Of Girl With Rare Disease
The Andhra Pradesh government has sanctioned Rs one crore for the treatment of a two-and-a-half year old girl suffering from the rare Gaucher's disease.
-
Court Expresses Displeasure Over No Treatment For Kids With Rare Disorder
The Delhi High Court on Tuesday expressed its displeasure over treatment not yet provided to the children suffering from the rare disease Duchenne muscular dystrophy (DMD) despite the direction of the court.
-
Rs 16 Crore Raised In Singapore For Treatment Of Indian-Origin 2-Year-Old
A two-year-old boy of Indian origin in Singaporerecovered from a rare neuromuscular disease and regained the ability to walk with the help of Singaporeans who donated nearly 30 lakh Singapore dollars (Rs 16.68 crore) for his expensive treatment.
-
23 MPs Meet Health Minister Over Treatment To Patients With Rare Genetic Conditions
A group of 23 Rajya Sabha MPs met Union Health and Family Welfare Minister Mansukh Mandaviya and sought his ministry's immediate intervention to provide treatment to the eligible patients diagnosed with rare genetic conditions, a statement said on W
-
Digital Crowdfunding Platform For Rare Diseases Now Operational: Centre To Court
The Delhi High Court was informed by the Centre today that a digital platform to seek crowdfunding for expensive medicines and treatment for rare diseases has now been made operational.
-
Make Digital Crowd Funding Platform For Rare Diseases "Operational": Court Cautions Centre
The Delhi High Court Wednesday said it would take action for "wilful non-compliance" if the Centre failed to make operational a digital platform for crowd funding of the expensive medicines and treatment for rare diseases.
-
Irrfan Khan's Battle With A "Rare Disease," Documented In His Tweets
Here's a timeline of Irrfan's diagnosis, his treatment, his journey and subsequent comeback to Bollywood
-
World Hemophilia Day 2020: Causes And Symptoms Of The Disease In Which Blood Does Not Clot Normally
World Hemophilia Day: Hemophilia is a rare disease in which the blood does not clot normally because of lacking sufficient blood clotting proteins. Read here to know common causes and symptoms of this condition.
-
High Court Asks AIIMS To Treat 18-Month-Old For Rare Disease 'Gaucher'
The Delhi High Court has asked the AIIMS to provide treatment to an 18-month-old girl who is suffering from a rare disease 'Gaucher', without charging anything from her father.
